Cayston arrived yesterday afternoon via the Fed Ex guy. I quickly opened it and let Madeline take a look at her medicine that she would be inhaling for the next 28 days. She was very intrigued by it. I am even more intrigued to see if it has the power to kill this nasty beast.
After 2 rounds of inhaled TOBI and Pseudo still lingering in her lungs, I had given up hope that TOBI was Madeline's lucky drug. I have heard from other adult Cfer's that TOBI just never worked for them and oftentimes it took Cayston to get their body to respond to the Pseudo. I am trying to be very hopeful .But, I am reminded of what we are battling every time I open the refrigerator to see our "case" of Cayston taking up almost a whole refrigerator shelf. I find myself staring hard at these tiny vials wondering if this will be our "magic" drug.
|Note the margarita mix below and the beers above?|
They help me keep my sanity. :)
After some crazed thoughts about TOBI and Cayston, I found myself stumbling on this article. It discusses how our "magic" drug may actually be what is taking up space in our fridge- Cayston. I do recognize that the
study was done by Gilead who are the manufacters of Cayston ....which makes your wonder if it's the study is totally believeable. I want to believe it.
|Altera Neb with Cayston|
I want to believe that Cayston will kill Madeline's psuedo. I want to believe that a cure is coming sooner than later. I want to believe that Madeline will live a long life. I want to believe all of this.
So Cayston ...do your magic. Make me believe that all of these things are possible.
I want to be a believer.....