The truth is that the effort lies in cleaning and disinfecting this thing. It isn't terribly hard, and if you have used the other similar machines ( as mentioned above- TRIO or Altera) then it pretty much is the same step by step lengthy process. Really, that is what makes it more time consuming. Each part of the mouthpiece has to be soaked in soap and water, rinsed, boiled (or microwave sterilized). This is typical for most nebs but, the aerosol head is what separates the lengthy care.
This is what an aerosol head looks like.
|All the pieces for the mouthpiece|
|eRapid Mouthpiece assembled with child mask|
Madeline was easily able to hold this on her own while doing the ipad. Once it's done nebulizing the medication, the machine beeps twice and a check mark icon appears on the machine's window.
|Base (shows light up screen with prompts)|
The whole machine costs around $1000. There was no way that our insurance would have paid for that nor were we going to fork out that amount! But after speaking directly to CF Services Pharmacy, we realized that we already had the bulk of the machine. Apparently, the Altera machine base is the same (which we already had from doing Cayston last year) but, the mouthpiece is different. For a little over a hundred dollars, we were able to just purchase the the mouthpiece in order to officially have an
"eRapid." I have noticed the medicine reservoir is deeper (allowing it to hold more medicine) and the head is designed to nebulize many types of medications (unlike the other machines.). So, if any other cf families have an Altera machine....guard it with your life. You have a very prized possession.
|Entire eRapid System (includes mouthpiece with mask and base)|
After Madeline tested negative for Pseudo last culture (the first time since her hospitalization after getting IVS), our clinic gave us the choice of stopping the TOBI (antibiotic to treat Pseudo) or to continue it for a few more months in case it could come back. We chose to continue with the TOBI in the hopes that the next month with keep the Pseudo away and give it less chance of it ever coming back. We hope that once we get another negative culture we will stop the TOBI altogether. I cannot wait to give all these machines a rest. But until then,we are enjoying our 6 minute, quiet E-Rapid!
|My champion using her eRapid for the first time!|
You can read more about the machine here. As of now, it is only sold through CF Services Pharmacy.
It is manufactured by PARI.