|Registration and waiting to be called to nurses station for stats check|
|height check at nurses station|
|Doing ipad with Daddy while waiting for more specialist to talk with at clinic|
We were very excited to ask about the eRapid Nebulizer System that allows CF patients to do all the same inhaled medicines we are currently doing in about half the time frame. We realized at our CF Clinics Family Education Day (after talking to the CF Services Pharmacy Rep), that we already own part of this machine that was given to us years ago for a different use. The only part of the eRapid that we needed was the handset/mouthpiece which is relatively inexpensive to purchase if our insurance does not cover it. Our clinic was very supportive and is in the process of working to get this nebulizer system in our hands. You can read all about the eRapid here.
|Madeline talking to Dr P while she is listening to her lungs.|
Dr P was able to listen to Madeline's lungs, check her ears, check her gut, and go over a few questions with us while Madeline showed her SUPER brave side. She pretty much took over her own appointment asking if the doctor wanted to look in her ears, get a throat swab/culture, etc. Madeline asked if she could sit on the exam table. We were blown away with how incredibly brave and confident she was being only 3 and having gone through the scary sides of hospitalizations, clinic, and unpredictable medical staff. We were so proud!
We finished off the clinic appointment with a BMI of 87 and a weight for age percentage of 92%. The doctor was very pleased with Madeline's growth, health, and BMI. We know that every great clinic visit is a celebration and, we felt very fortunate that Madeline seems to be doing so well right now. There have been times where this wasn't the case with CF Clinic and we often remind ourselves that we have to enjoy these moments.
We headed out to a celebratory lunch at Arrundel Mills Mall
|Hot dogs at the BW3's and a crown that says "Wild Winger!"|
And now we wait for the CF Clinics call next week about Madeline's throat culture.... It's more than likely that Pseudo will be on the culture -since it's been there for nearly 2 full years with no luck of getting rid of it (after a hospitalization, a variety of inhaled antibiotics, IVs,, and oral antibiotics. We also hope that no new bacteria has presented itself on her culture.) It seems apparent that Pseudo has so little to do with Madeline's health right now. She is thriving, she is healthy, she is energetic, she has no cough, and she is happy. We are beyond happy about the outcome of this day and our brave, strong, and vibrant little girl! We are truly grateful. Thank you everyone who continues to keep up with Madeline's journey, her cf fight, and holds us in your thoughts We are so thankful.....