|The Laurie Berkner Band|
It is no joke that cf clinic appointments are mentally and physically exhausting It is quite a process
speaking to nutritionists, nurses, pharmacists, and then her doctor. It reminds us that Cystic Fibrosis is a HUGE part of our daughter's life. This appointment isn't too different. It will involve getting annual blood work done or possible x-rays. Every September I hold my child down while someone tries to find a tiny vein to poke for 4 viles of blood in order to test her vitamin levels. The x-rays can be even more draining. Someone straps your child to a board with velro straps while xrays are taken. It's hard watching your child scream in fear and you can do little to "save them." This is the appointment that I feel as though my child looses trust in me for just those few minutes. And then suddenly we walk out of there....
...and life resumes as normal. I am thankful that life has been bouncing back lately and, we haven't had any HUGE cf hurdles yet (knock on wood!) There is always something to celebrate the day after clinic- whether it be big or small. We continue to be thankful that Madeline remains "non symptomatic" even though her cultures continue to come back positive for Pseudo.
Again we appreciate all the inquiries and comments about Madeline's health. We couldn't do all of this without our family and friends... Updates later this weekend!
|My little "porker" (love ALL the chub!)|