We faired well through Hurricane Irene and we are very thankful for that. Just days before she arrived we rushed out to try and buy a generator in the area. We actually had to put a deposit on a generator over the phone before it arrived in the store- that is just how SOLD out they were. The store promised a shipment the next day...and sure enough we got a call that our 5500 watt generator that arrived! Lucky for us, we didn't have to use it! Our power stayed on! We had a lot of rain and 50 mph winds but overall no damage. We were very thankful that we live in a new neighborhood with virtually NO trees. After feeling our first earthquake last week and hurricane this week....we have had enough excitement from nature for awhile!
|Lot behind our house during the beginning of the storm...|
We are getting VERY close to finishing up the TOBI treatments. In two days, we will officially be done with her inhaled TOBI for this cycle. She has done amazingly well with this round and has decided to hold her own nebulizer from time to time. Madeline sounds very hoarse from this round of TOBI and it seems like her throat might be a bit sore. We have seen these side effects before from TOBI but not as severe. We are very hopeful that this might mean TOBI is working hard at killing off this Pseudo. We return to CF clinic in a few weeks for a new culture and discuss what is "in the plans" for Madeline if she continues to culture this bug. She still looks healthy, displays NO cough, and has enough energy to wear me out from just watching her go.... It is still hard to believe that Pseudo is living inside her.
|Sleeping while being shaken like crazy?!|
|Steering is not a priority...more things to look at.|
|Her "fascination face" as she watches her feet push the pedals....|
We hope you are enjoying the last few days of your summer....