tag:blogger.com,1999:blog-4235204047012532310.post3944680707233709713..comments2023-09-15T09:45:55.078-04:00Comments on Mommy For Madeline: Clinic and Culture ResultsAnonymoushttp://www.blogger.com/profile/14866301344121804784noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4235204047012532310.post-65730088184166977532011-09-20T17:02:10.456-04:002011-09-20T17:02:10.456-04:00Oh, Sandy, so sorry to hear this! Hate Pseudo so ...Oh, Sandy, so sorry to hear this! Hate Pseudo so so much! Best news is that the weight gain is awesome and she is well! Well done to you! I do hope you work out a good plan of attack that you and the team are comfortable with! We are in the same situation, actually just returned from clinic and we too are trying to decide the best plan of attack! Our stories are so similar! Tommy has cultured PA now on and off for 2 years, and although a very light growth we are now going to look at a bronch in December then IV's depending on what we find! It is all just to much sometimes, but hang in there, we are fighters together! Let me know if you want to chat!! Big hugs to you and your gorgeous girl!!Nataliehttps://www.blogger.com/profile/04835756685178427484noreply@blogger.comtag:blogger.com,1999:blog-4235204047012532310.post-27842996803800158662011-09-20T12:31:50.590-04:002011-09-20T12:31:50.590-04:00Hey sandy I'm frustrated for you all. What I c...Hey sandy I'm frustrated for you all. What I can say is when soph first grew pseudo at 6 months, we did 3 months cipro and colistin and then 14 days ivs. And we eradicated it. Unfortunately for us she picked it up again around 2 years of age and we tried everything again but no luck and now it's here to stay.<br /><br />Point is colistin did work for soph and still continues to keep the numbers down and has actually reduced them to some extent, so I'm hopeful it will help M. I hope that you knowing how well soph is gives you some comfort of Mr P. I went through all the emotions under the sun when we finally agreed it was going nowhere. It's hard but I looked at the positives, no lung damage at all, no symptoms and we react to any coughs and colds quickly.<br />Sounds like you had a great over night trip and M is doing awesome nutritionally.<br /><br />Lots of love coming your way and we are right behind you with the fight. It ain't over yet!<br /><br />XxxGemmahttps://www.blogger.com/profile/11957950095913776584noreply@blogger.comtag:blogger.com,1999:blog-4235204047012532310.post-3874382340533281782011-09-20T11:30:33.666-04:002011-09-20T11:30:33.666-04:00Sorry to hear about the Pseudo. I know the first h...Sorry to hear about the Pseudo. I know the first hospitalization is the hardest but it will kick it and then you won't have to worry any more. Seamus has had multiple PICCs and scopes and they are never easy but I always think that in the end, it's going to make him healthier so they are worth it. Hopkins knows their stuff so they will only do what's best for Madeline. If you want to talk on the phone, message me on FB. I can give you the low down on Hopkins hospital, nurses, cafeteria, etc. <br /><br />-JulieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4235204047012532310.post-8395837996479597722011-09-20T11:06:51.577-04:002011-09-20T11:06:51.577-04:00Boo for the Pseudo. What a beast and a huge pain i...Boo for the Pseudo. What a beast and a huge pain in the tush. I pray this round of meds work some magic and keep your girl out of the hospital. FABULOUS news on her weight though. She is such a beauty!!Jenhttps://www.blogger.com/profile/17013064697836797088noreply@blogger.com